27
May
“Beach Weekend”
My grandmother, John, and I are going to the springs this weekend/Monday for Memorial Day. It’s our big “Beach Weekend.”
Pictures to come…
25
Apr
my egg, tie dye.
24
Apr
Dying Easter Eggs
08
Apr
Nothing but Net
A short story I wrote for the National Down Syndrome Society’s “My Great Story” campaign.
Join the National Down Syndrome Society’s campaign to
celebrate and honor the great stories of
the 400,000 Americans living with
Down syndrome.
04
Apr
John and me in a #photobooth, sketching at #ChuckECheese
02
Apr
Today my brother did something so out-of-character for him, that it almost made me cry out of frustration. I realized just how hard life might be for him, because he doesn’t always understand correlations.
In the moment, I was so angry at myself, because I didn’t know how to handle his behavior. How much does he actually understand? I felt really insufficient to help him — I haven’t done enough to understand him.
He’s so special, and I just want other people to see that.
30
Mar
Don’t say you can’t find something if you haven’t actually looked for it.
21
Mar
World Down syndrome Day
“This date (21/3) represents the 3 copies of chromosome 21, which is unique to people with Down syndrome.”
— Damon Hill OBE
15
Mar
John, 2003
22
Dec
Go ahead and have Christmas. Then worry about it.
a handyman who came to check out a leak in our pipes.
